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Lessons learned from my most recent sickle cell pain crisis
When a sickle cell pain crisis landed her in the hospital, columnist Mary Shaniqua soon identified the cause: getting two ...
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SCD patients free of VOEs after treatment with gene-editing therapy
Nearly all the patients with severe SCD treated with the gene-editing therapy reni-cel remained free of VOEs for up to two ...
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Etavopivat may reduce VOC rate, increase hemoglobin in SCD
Data from a Phase 2/3 trial shows etavopivat may reduce the incidence of vaso-occlusive crises and raise levels of hemoglobin ...
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Why it’s important to celebrate good care when we receive it
Sickle cell patients often face challenges when implementing their care plans. Columnist Mary Shaniqua describes what good ...
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Most SCD patients given Lyfgenia in trials stay free of VOEs: New data
The majority of SCD patients given Lyfgenia in clinical trials remained free of vaso-occlusive events (VOEs) following ...
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Trial of gene-editing therapy into SCD’s cause opens in California
Two centers in California are enrolling nine people with severe sickle cell disease (SCD) for a clinical trial of a new gene editing therapy called CRISPR_SCD001. The Phase 1/2 trial (NCT04774536) is ...
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I’m learning to manage my anxiety as a sickle cell caregiver
Caregiving is a journey I hold close to my heart, especially as it involves my dear cousin Ada, a vibrant adolescent and a true warrior living with sickle cell disease. Yet I must admit, this journey ...